… and, Breathe

Originally posted on The Life of Things:
November 18.  Four years ago today we got the news that we’d been waiting for.  The molecular scan of my latest bone marrow biopsy showed I was in molecular remission.  It was a big deal.  My honey gave me a necklace with the date, a heart, and an…

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Eight Years

Eight years ago today a doctor walked into my hospital room and told me I had leukemia. Since then I’ve periodically asked a question of myself.  Not, as you might expect, why me, or even just why.  There is no why.  It was random, not predictable, and as far as we know not preventable.  ItContinue reading “Eight Years”

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Crying Tears of Joy, In the Garage

Ever find yourself sitting in the garage after you’ve pulled in, unwilling to get out of the car because the song that’s playing is making you feel something? That was me just now, and damn, it is great to be alive. Every once in awhile I find myself, because of a song, or a video,Continue reading “Crying Tears of Joy, In the Garage”

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Finally, I Say Thank You

It’s taken three years, but I finally wrote the email I’ve been thinking about writing for a long long time.  I finally said thank you. I could reiterate here what I said, but I think I’ll just post the letter I wrote.  If there are people out there in helping professions, know that you makeContinue reading “Finally, I Say Thank You”

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Go Live a Normal Life

I’m crying.  I can’t seem to stop.  I dry up for awhile, and then there they are again, tears falling down my face uncontrollably.  I’m not sad… no, not at all.  These are tears of joy.  Tears from days, and weeks, sometimes hours, and two years and four months. Wow.  What should I do now.Continue reading “Go Live a Normal Life”

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The Power of Two

Here it is, June 1.  I am amazed this much time has passed.  Two years.  Two. Two years ago today I was a sick puppy and ventured into the urgent care, on the insistence of my honey and of the nurse who I’d talked to on the phone.  Urgent care to hospital via ambulance aContinue reading “The Power of Two”

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Give Me an A, Give Me a T, Give Me an R, Give Me an A… What’s it Spell?

ATRA… It’s cycle ten, people. Can’t believe it. 19 months since this all started and only just over nine months to go. I saw my oncologist today. The every three month visit. I had a couple of concerns as my liver counts had been elevated for awhile. My GP even ordered an ultrasound last weekContinue reading “Give Me an A, Give Me a T, Give Me an R, Give Me an A… What’s it Spell?”

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Busy Weekend

It’s been a busy busy weekend.  Friday night dinner at Stan and Connie’s, with Stacia, Kev, my honey and I.  It was a great time.  Excellent food, as always, fantastic company ( I love you guys), and just really relaxing and comfortable.  Then yesterday Karen and I headed over to Maggie’s for a pumpkin carvingContinue reading “Busy Weekend”

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Maintenance

Hey all… been a few days.  Again.  We had a busy weekend, a lay low day on Monday (Karen had to work, but we didn’t go anywhere), went to get some new glasses ordered for Karen yesterday and stopped off at the park to take the dogs for a walk on the way home, andContinue reading “Maintenance”

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Day 15

It’s been a few days since I posted anything.  Not much happening around here, for me anyway.  Just laying on the couch being sort of tired as my numbers are down.  Blood draw tomorrow.  Here’s hoping the neupogen has done it’s job (had to get three more shots, for a total of 11… the lastContinue reading “Day 15”

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Neutropenic… Again

Just got the news from today’s blood test.  I am, once again, neutropenic.  Numbers are low.  They are hoping they don’t stay low for long, given that I’m on the neupogen.  Here’s crossing our fingers, toes, and whatever else you can cross, that I don’t get another neutropenic fever.  I haven’t had a fever atContinue reading “Neutropenic… Again”

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Emotional

Man oh man… I have been really good about holding it together through this process.  Staying focused, not letting it get the best of me, etc.  Very good actually.  Keeping my eyes on the prize as they say… the end of the consolidation rounds, entering maintenance, not having these ups and downs in my numbersContinue reading “Emotional”

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Back In

Well folks…. I’m back in. Spiked a fever and had to come in for antibiotics. My counts are very low… So the plan… I have to be here until my counts reach a certain level. Until then I’m here, on antibiotics every six hours…. And constant saline. We are hoping not too long, but it’sContinue reading “Back In”

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Yep… Neutropenic

Here we are… day 10 from the start of the last consolidation, and I am very neutropenic again.  Red blood cells and platelets are OK, and normal, but the WBC and neutrophils are low low low.  Nancy says the lowest they’ve ever been.  She said no big deal other than I have to be veryContinue reading “Yep… Neutropenic”

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Blood Clots… Oh My

Got a call this morning saying that they had scheduled me for an ultrasound. I’d called the oncology advice nurse yesterday because my veins were still sore from my last round of chemo. Results of the ultrasound were that I have two small blood clots…. One in my arm and one in my hand. TwoContinue reading “Blood Clots… Oh My”

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A Tale of Two Counts

Went in for the blood draw today.  Counts are in and it’s a mixed bag.  My hematocrit and hemoglobin (red blood counts… RBC) are up a bit.  My platelets are down a little, but still in the normal range.  My white blood count however, along with the neutrophils, are down again.  I’m still in theContinue reading “A Tale of Two Counts”

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Dancing Bald

Last night I discovered something amazing… I dance better bald.  It’s true.  Granted I was sitting and dancing, but that just makes the head movement all that more important.  I’m sure it’s true though, so it can only mean one thing… hair creates resistance.  My head moves more freely naked.  A positive since we danceContinue reading “Dancing Bald”

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The Return of Neutropenia

Went in for the bi-weekly blood test today and the results are in… I am, once again, neutropenic… yay????? (sarcasm folks!  LOL).  Good thing we were preparing for this and acting as if I was already.  The only no no we committed was that I went in for the blood test today without a maskContinue reading “The Return of Neutropenia”

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11

Tuesday… Blood results were as expected, I guess.  White blood cells and neutrophils are low, though I wasn’t in the neutropenic range yet.  We don’t know if they are still falling or going up, so we are acting as if I am neutropenic as they weren’t that low, but they were close enough.  My redContinue reading “11”

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Tuesday… Day 10

Went in for the blood draw today.  After that we sat in the waiting room of the oncology department for an hour waiting for an advice nurse.  She finally came out to tell me that the sore spot on my hand, the one with the lump in it that is where I had an IVContinue reading “Tuesday… Day 10”

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Day 9

Sunday, day 9.  It’s been a similar day to yesterday… decent morning, slightly rocky afternoon… but not bad.  My honey went to the store today, cleaned the house, and has been outside washing cars and cleaning and weeding and playing in the shop.  She is a busy girl, and amazing.  The little girlie is outContinue reading “Day 9”

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Saturday And The Livin’ Is… Slightly Queasy

So here we are, day 8 from the first day of this last chemo round.  All in all I’m not feeling too bad.  Woke up well, but have felt a tad queasy since lunch.  Took the temp and it’s all good, no temperature, and that’s the biggie. Karen ended up having to work today forContinue reading “Saturday And The Livin’ Is… Slightly Queasy”

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Friday – Day Seven

It’s been another day hanging at home and enjoying the company of great visitors. Stan, love you man.  It’s always so nice to sit down with you for a bit and chat.  I miss you and seeing you always makes me feel good.  Sean and Hayden… nice to see you guys as well.  It’s beenContinue reading “Friday – Day Seven”

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