Had a kind of hard day today. Just not feeling well. It’s day 7 of my cycle. I made the mistake of getting up and taking a bath, and then shower to rinse off, right away. I should know better. I need sustenance before I do anything when I’m going through this. No energy before food. So by the time I was out of the shower I had to lay down immediately so I didn’t throw up or pass out. Not fun. I managed to get through that, but it has informed my entire day. Nauseated on and off all day. I’ll get through it.
In other nice news though… Karen booked her return flight. She is coming home on Friday, October 1, at 1:15. I miss her terribly so knowing that she will be home in 9 days is the best gift I could get… even though she sent me another birthday present today. First she gets me a wonderful new watch that I can set two times on so that I will always know what time it is in England while she’s there (she’s a great gift giver!), and then today I get a Kindle. Yep… she got me a Kindle. So cool. I’ve talked about getting one, for traveling mostly, and so she got me one. It won’t always replace books, which I love, but it will definitely be cool to have. I love that woman of mine. She’s the best… and I mean that. I don’t say it lightly. She knows me, and loves me for me. What more can you want in a split apart?
Otherwise… Mom gave me my fourth shot today. I have to move them around and so this time it was in the arm. I can’t really reach to do it properly myself in that spot so Mom volunteered. I told her I would do it in my leg again, but she wanted to help out. So there it is. 4 down… 4 to go.
Now… time to watch Bravo’s Top Chef Just Desserts. I’m addicted.
Neupogen… the med of the week. I’ve done two injections so far. Not bad really. Mom hangs with me for support. Hopefully it works and I avoid the neutropenic fever and the hospital.
Otherwise…. I talk to Karen a couple of times a day, sometimes getting to hear Sebastian cooing while he’s sleeping on grandma, like this morning.
Mom has been wonderful and fantastic! I love her so much!
We went in today for the first of two pushes in my last consolidation round. Had to be there at 8:00 this morning, which is tough for a girl who is used to getting up some time between 8:00 and 9:00, but I did it. Drove in, had the blood draw at 8:00, killed some time for an hour and a half until my appointment with Dr. Bigler at 9:30, he looked me over and the numbers over, said everything was good to go, and we then went over to the chemo area. I had to wait there for an hour before getting in. Finally we walked back and I got an IV in… tough, but not too bad, and the saline started. I then got my pre-meds (some stuff to help me not get nauseas) and about a half an hour later, the push started. The nurse was great… she pushed a bit slow, making sure it was nice a diluted as it went in (trying to prevent the phlebitis I’ve gotten the last couple of rounds) and then it rinsed through with saline and we were out of there. I was starving by then… it had been a long time since the morning cheerios, so we went down to the cafeteria in the central office (convenient) and each had a sandwich. Then home…. Which is the best. I got to come home. No hospital stay to get this done. Just the push… then home. Nice. And for dinner tonight? A salad with chicken, parmesan, eggs, peppers, tomatoes, and blue cheese dressing. Not to mention a nice piece of toast to go along with it. I was not neutropenic this morning when my blood draw happened, and we are assuming I am still not neutropenic for at least today and tomorrow. Probably not until Monday at the earliest… though something we’ve definitely learned is that each consolidation round is different than the last. We’re hoping no fevers, no hospitals, no transfusions. Just a decline during the nadir and then a rise to October 15 and my meeting and start of the maintenance round. For now though… home sweet home. It’s nice.
The changes… I got a bit less chemo (they reconfigured because I’m now on outpatient status, based on weight and height… and since I’ve lost 40 pounds the amounts were less) and they also reconfigured the amount of ATRA I’m getting… 9 pills a day instead of 10. I start that again tonight. One other thing… I’ll be giving myself a shot every day for a bit starting on Saturday. It’s called Neupogen… it’s supposed to help my white blood cells recover faster. My doc is trying to avoid me getting another neutropenic fever. The shots didn’t seem that bad as I was practicing on a little thing at the chemo center. We’ll see how it goes as I give them to myself. I might have to talk Mom into giving me some of them. We’ll see how it goes. I don’t know how long I’ll have to do it… probably at least 7 days… but it’s based on my numbers, which the pharmacist (as well as my case manager as usual) will follow them. I might have to go in three days a week instead of the two during this time, we shall see. Nancy told me to tell the pharmacist that I am already getting my blood draws twice a week. Maybe that will be good enough… if not, I won’t be doing this too long (hopefully) so it won’t be too bad. We will do what I have to… as always. I got refills of zofran (anti nausea med) and a refill on the Ativan ( I was running low). I also got a medicated lozenge for the thrush I’m having after the antibiotics I got in the hospital. Something I’ve learned with this is that there’s always some little thing. Part of the process… but hey… we are moving through it.
Taking it day by day… and tomorrow… the last push, which just happens to coincide with my 45th birthday. Two things to celebrate in one day.