Just got a call from my doc’s office with the numbers from the blood draw yesterday. All were really good, except my white count was 3.2. That number isn’t bad at all in and of itself, but it puts it in the range where my maintenance dose is reduced to half. This has happened a couple of times before, which is why my blood is monitored every week… if my white count falls into a certain range it’s an automatic reduction. Anyway…. my doc has decided to leave me at the half dose during the time I’m in England, since this reduction in white count has happened before. This makes it easier for us while we are there so we don’t have to worry about whether the counts are over that reduction edge. The protocol calls for reduction to half anyway if this happens a few times. My guess though is that when we return he will probably increase me to the full dose again. I’ll also be on another 15 day round of ATRA starting the day after we get back. But that’s then… for now we are getting it all ready. We will go in today so I can get the shot and also will be picking up all the meds (the shot meds for the month, enough pills for the month, and then refills of other meds for me to take in case I need them… ambien, etc.).
I’m starting to get excited….. we are actually going to be able to go. I’m actually going to be able to go!!! Woo Hoo!!! I’m crying right now… life is so beautiful!!