I’m sitting here in our family room typing on my new laptop (thanks honey!). My sweetie is sitting out in back at our little table, under the umbrella, working. Nice place to work. Mom just took the dogs for a walk. It’s supposed to be hot-ish today. Near 90. I’m having a decent day.
My days go like this, pretty much…. sleep to 8:30 or 9:00 (so nice to be able to sleep after not really being able to sleep in the hospital for so long), get up and come into the family room. Get set up with pillows and a blanket (Debbie… I’m using the purple blanket you made for me… I love it. Thank you so much!), tv on, pre-meds (anti-nausea) taken. Breakfast (consisting of either cheerios or cream of wheat or rice) about a half an hour or forty five minutes later accompanied by the 5 pills of ATRA (oral chemo). Then it’s just a day of sitting watching tv, playing on the computer, etc. I get some snacks, I get lunch, then at dinner time I get, yep… more pre-meds followed about a half an hour or forty five minutes later by dinner (lately that’s been steamed smashed potatoes with broccoli and cottage cheese on it) and 5 pills of ATRA. I’m taking 10 a day. Then, after watching a movie with the family, bed time at 10:00 ish. I’m feeling OK. Stronger than I did, definitely, before this whole thing started, but not nearly what normal would be. Weird to have this very low level of energy. But again, it’s better than it was when this whole thing started.
So it’s supposed to get up into the 90′s this week. Good thing my honey went and got us an air conditioner. We are set up in the bedroom with it. Thank goodness. If it gets too hot in the family room during the day (and this is usually the coolest room in the house normally) we can move this show to the bedroom during the real heat of the day. It’s the small things in life that make it, ya know? I’m grateful for that air conditioner. I’m grateful for my honey, for my Mom walking the dogs, for this blanket, for the friends and family who keep sending me notes and holding me in their hearts. I’m holding all of you back you know… hanging on tight and feeling the warmth of all that love. Brings a warmth to my soul much warmer than the heat that will come in the next few days. MUCH warmer.