I realized that the further I get away from the start of all of this the more fuzzy it gets. My solution…. Recap. This is more for me than for all of you, but again… My blog. You can skip to the next post if you don’t want to wade through how short or long this becomes.
May 18…. Doctor for sinus.
May 19-24…. Atlanta – much more tired than I should have been
May 25 – back at work
May 26 – dentist for abcessed gum procedure
May 27 – called advice nualrse and ended up with another round of antibiotics for sinus (never saw a doctor)
May 28 – May 31… Home sick
June 1… 4:00 PM…. Called advice nurse in afternoon after not being able to walk to kitchen in house without feeling like I was going to hurl from fatigue. Was told by advice nurse after relaying my specific symptoms that I should go to urgent care.
June 1…. 5:15 PM…. Arrive urgent care. See doc, Eric Martin, at 7:45. He listens to symptoms, looks at me, talks to Karen about my color, etc., and gets blood tests done.
June 1…. 9:30 PM… Doc comes in and says, “girl, you are really sick. I’m checking you into the hospital and you are going by ambulance. They will have to do a lot of tests, a lot of tests, and then they will let you know for sure what’s going on.”
June 1…. 10:00 PM… Ambulance comes and picks me up.
June 1… 10:30 PM… Arrive at Sunnyside and get taken directly to Oncology floor and room 442.
June 2…. 2:00 AM… First transfusion begins
June 2… 1:00 PM…. Bone marrow biopsy
June 3…. Second tranfusion
June 3…. 4:00 PM…. Dr. Bigler came in and talked to us, finally giving the news that, “my marrow was chalk full of APL Leukemia”. I then say…. OK, what do we do about it. What’s next.
June 3….. 6:00 PM…. First round of ATRA chemotherapy pills
June 4…. 8:00 AM…. Second round of ATRA
June 4…. 10:30 AM…. Muga scan (nuclear scan of heart to make sure my heart was strong enough for the ATRA regimen)
June 4…. Noon…. First IV Push of chemotherapy med Idarubicen
June 5…. ATRA continues morning and night
June 5… IV site fails…. Other attempts made and then picc line decision made
June 6…. Third transfusion
June 6… ATRA continues…. Second IV push
June 7…. ATRA continues morning and night
So many more things happened, and continue to happen, in the course of all of this…. So Many talks with fantastic nurses and doctors answering our questions, giving us lessons on what this and that means, taking a shower without being able to use my right arm because the picc line is in that side, pills for all sorts of things, eating on time, getting vitals done often, measuring my liquids in and out, great talks with Karen, mom, and Kev, having Saline IV sometimes, getting my own clothes, so much love pouring in from family and friends…..
And that my friends is a non-comprehensive recap!